Julianne is all sewed up and healed up now from her gtube site repair. She still has limited amounts she can consume at once, but that is just a few more days. We also know that her neck has good stability from the xray. This all means that we are able to let her do things that she hasn't been able to do.
She got to get on the trampoline for the very 1st time this evening. She has been wanting on, but we couldn't let her on until we knew if she had "neck instability" or not. Since her neck is fine she can get on (very carefully since she is tiny!). So I got on with her and kept a hold of her most of the time. Daddy stood at the enclosure opening just in case. Dayton couldn't wait, so he got on and jumped a little on the other side just to see her giggle. (She is so lucky to always have bigger siblings anxious to spoil her. lol) He got off and she tried to "prance" on it a little. She was so happy! I'm sure she'll want to do it again soon. I just have to be on there with her and only one other person who can bounce lightly.
Julianne used to love baths before they removed her gtube and left her leaky. She had a big bubble bath tonight! There was a lot of splashing and I was almost as wet as her. It was so good to see her laughing and playing in that tub of bubbles!
That little princess and her extra chromosome sure do have us all wrapped tightly. Seeing her smile makes this whole house full of people all feel blessed!